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Richard Hennah. Despite
a good amount of training, ICAP DeBRA L2P Cycling
Team (a team of five cyclists) are not expecting to be first
to cross the Paris finishing line. However, we do anticipate
finishing the three day, butt-gruelling race euphoric, exhausted and
ready for a few large beers (and a good tiger balm rub down!)Thanks
in advance for donating to this terrific cause and I'd also
like to extend a very large thanks to my employer, ICAP
for their generous sponsorship of the team.
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Catina
Bernadis. I
am a plastic surgeon working at St Thomas' hospital
in London, and part of my work involves surgery on
patients with EB. I most commonly operate on hand
deformities, when the fingers are so contracted by
scar tissue that they no longer work independently,
releasing and skin grafting them. I also remove skin
cancers that may develop. EB is a genetic disease
and, in its worse form, causes ulceration covering
most of the body which requires daily, painful dressings.
Scarring from ulceration causes contractures which
may involve the eyelids, neck, elbows, wrists, hands,
knees, feet, and can result in severe deformities.
Skin cancer may also develop. Yet despite the daily
challenge that people with EB and their families
face, I am constantly overwhelmed by the way those
involved refuse to be defeated.
The underlying collagen abnormality in EB cannot yet be treated, but some progress
is being made. For example, the injection of fibroblasts has been used in some
chronically ulcerated wounds which have healed within 2 weeks. Developments such
as these may result in a reduction in chronic wounds, less scarring, fewer contractures
and a reduced susceptibility to develop skin cancer. But a cure remains the goal.
I was first told about the L2P ride by one of the Dermatologists a couple of
years ago. Without really thinking about the miles (let alone the hills!) involved,
I thought that it would be fun to cycle to Paris. After all, I commute to work
daily on my pink, folding bike, and once cycled from London to Brighton! I now
realise that the challenge will be a little greater than I had anticipated, but
am looking forward to it enormously. I am very grateful to the ICAP team for
welcoming me and thank you for any support that you are able to give to DebRA.'
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